Lexi had her MRI at Hopkins today and it went well. She was very brave and we made it through the day. The official report for the MRI from the pediatric radiologist and the pediatric surgeon will not be back until Monday. The preliminary report from a Hopkins Fellow was as follows...
the good news..
they do not think that it is a tumor
they do not think that it is in her chest cavity at all
they believe that it is a cystic hygroma
the bad news....
it is large in size
may be too large to remove
So now we wait until Monday for the official report and speak with the surgeon at Hopkins. In the meantime we have sent the CD of the MRI to the Vascular Anomalies Clinic at Children's Hospital in Boston for their opinion. Hopefully on Monday we will have an official diagnosis and what they are suggesting for treatment. If it is too large to remove, we will have to look at options for trying to shrink it in size and then hopefully options for removing it...I'm just trying to breath and take it minute by minute. I'm thankful that she made it through today and that is appears to not be a tumor. Keep her in your prayers...
Thank you for the update. I have been thinking about you guys all day. I am glad to hear that there was some good news. We will continue to pray for you all. You are an amazing family. We love you!
Posted by: Jenny, Ted, Emma, and Andrew | May 15, 2009 at 09:37 PM
Thinking about you guys every day... sending the best thoughts your way.
Posted by: Tara | May 15, 2009 at 10:14 PM
There is definitely more good news than bad news! We'll keep our fingers crossed and keep you all in our prayers.
Posted by: Robin | May 16, 2009 at 05:33 PM
We continue to pray. Hang in there.
Posted by: Linda Barry | May 16, 2009 at 07:29 PM