So there is hospital time and then normal time. Hospital time means when you hear "right away" it means weeks/months, when you hear "I'll call you right back" it means in a few days. I can't stand it!!! Getting Lexi an appointment for an MRI has been tough. We have tried Children's in DC and Hopkins trying to see which place would get in her faster. Ms. Zoe at the doctors has worked hard and spoken with many rude people trying to help get Lexi an appointment. As of today she will have her MRI at Hopkins on Friday at 12 noon.
We have been in contact with a doctor at Children's Hospital in Boston who specializes in vascular anomalies which the cystic hygroma would be. He has been very kind and has agreed to begin reviewing her case without us making the trip. I have already sent a CD of her sonogram, pictures of her back and a medical report about her health. When the MRI is complete it will also be sent. He will then give a diagnosis and treatment plan. If we need to make the trip to Boston we will be on a plane right away without even thinking twice about it. As my pediatrician put it "you want someone who specializes in what is wrong with you."
Please say prayers for a good report...
We are praying!
God bless,
Bob and Linda
Posted by: Linda Barry | May 11, 2009 at 01:16 PM
How frustrating. The doctors tell you that they need to move quickly, and then take their time. I will be praying for all of you and hope that the MRI shows good news. Hang in there!
Posted by: Robin Mattox | May 11, 2009 at 03:16 PM
Erin,
I am so sorry to hear about all that you are going through. You all will be in my prayers each day. Think of you often!
Lots of love to you all,
Kelli
Posted by: Kelli | May 11, 2009 at 06:45 PM
Sending lots and lots of good wishes and prayers!
Best wishes,
Amy
Posted by: Amy Ferguson | May 12, 2009 at 10:02 AM
I am so sorry. You definitely do not need any of that extra stress. We are thinking of you and sending love your way. Thanks for keeping us up to date. I am always wondering how everyone is doing.
Posted by: Jenny, Ted, Emma and Andrew | May 13, 2009 at 09:55 PM
Doctors have no idea what patients go through when you are waiting. Fingers crossed for tomorrow! We'll be thinking of you!
Carla, Jason, and Dylan
Posted by: Carla | May 14, 2009 at 10:33 AM